![]() We hope these findings could be of utility to both employers and policymakers when advancing the national provision for mainstream genomic services.Īustralian life insurance companies can legally use genetic test results in underwriting, which can lead to genetic discrimination. Findings are brought together as a list of suggestions to support this subset of the profession going forward. Still, career progression was limited in many cases due to issues obtaining professional registration, lack of support, and unclear definition of the mainstream GC role. Overall, participants expressed enjoyment of their roles and described key benefits of working in a clinical specialty, including autonomous working and developing expertise. Major themes were found to be: “Benefits”, “Challenges”, “Career Progression” and “Support”. Data was transcribed and analysed using thematic analysis to draw out major themes that arose from the discussions. Those who completed the surveys were then invited to take part in online focus groups. ![]() Online surveys were sent to mainstream GCs to obtain general demographic information and baseline data regarding experiences of working in these roles. The aim of this workforce evaluation was to explore the experiences of mainstream GCs. To our knowledge there have been no projects to date examining the experiences of mainstream GCs working in the UK. Most UK-based genetic counsellors (GCs) work within clinical genetics services yet there is a small and expanding group of GCs working within other clinical specialties, termed “mainstream” GCs. In addition, roles undertaken by genetic counsellors in specialist genetic settings could be adapted to integrate genetic counsellors into multi-disciplinary teams in other specialisms.European Journal of Human Genetics advance online publication, 11 June 2014 doi:10.1038/ejhg.2014.116. With the burden on genetic services, there is an argument for the increased use of genetic counsellors in countries where they are under-utilised. The findings of this systematic review indicate that where genetic counsellors are utilised in specialist genetic settings, they undertake a significant workload associated with direct patient care and this appears to be acceptable to patients. Themes derived from the thematic analysis of the data were: (i) rationale for genetic counsellors to provide care, (ii) appropriate roles and responsibilities and (iii) the types of conditions included in the genetic counsellor caseload. ![]() Of 419 potential papers identified initially, seven satisfied the inclusion criteria for the review. We searched five relevant electronic databases (Medline, CINAHL, SocIndex, AMED and PsychInfo) using relevant search terms and handsearched four subject-specific journals for research-based papers published in English between 1 January 2000 and 30 June 2013. To evaluate the extent to which genetic counsellors fulfil their prescribed roles, we conducted a systematic review of the published relevant scientific evidence. According to the European Board of Medical Genetics, the genetic counsellor must fulfil a range of roles, including provision of information and facilitation of psychosocial adjustment of the client to their genetic status and situation. In Europe, genetic counsellors are employed in specialist genetic centres or other specialist units.
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